I used to go hiking often before I was diagnosed in 2019 with multiple sclerosis (MS), an autoimmune disease that affects the brain and spinal cord. My condition affected my ability to walk. Two years after getting that news, I decided to commit to a weeklong trip with other young people with MS because it seemed like an interesting way to learn about the disease and to force myself to get moving again.
I chose a rock-climbing program in Estes Park, Colorado, because I didn’t want to put so much pressure on my feet. (I later found out the sport requires you to use your whole body!) Climbing also just seemed so badass.
I quickly realized that when I was surrounded by others with MS cheering me on, I was able to push myself a little more. The environment felt safe and familiar. We could choose to participate or sit out each day, and I surprised myself by climbing every single day.
On day three, however, I hit a snag. I tried to muscle my way up the rock wall with my arms and got stuck under a crevice beneath the peak. My arms were fatigued from the effort but also numb from my MS. I didn’t want to give up, but I couldn’t work out how to continue. I came down.
After a short coffee break to regroup, I sat with our lead guide, who shared a simple tip that stuck with me: Grip lightly. He advised me to put more trust in my legs and in my belayer (the person standing on the ground, handling the ropes attached to your harness).
I thought, How is that gonna work? But I gave it a shot and kept my hands light, drove through my lower limbs, and let go more than before. It was much easier and more fun. Before I knew it, I was at the top.
I flash back to that advice from my coach often. It was like a metaphor for how I was living my life. I had an epiphany that day: Not everything needs to be a struggle. Mindset is everything. Now, whenever I’m approaching something difficult, whether it’s work or my disease, I remind myself: Grip lightly.
Adventure Resources For People With Chronic Illness
Don’t let anything deter you! Tap into these orgs that make outdoor excursions more doable.
This article originally appeared in the July/August 2023 issue of Women’s Health.
